The Preeclampsia Foundation’s mission falls under three “pillars”: Community, Healthcare Practices, and Research.
Our approach starts with patients: our goal is to improve the lives of our affected community by engaging our patients and their families through education, engagement, and support while providing them a lifetime home where they can make a difference for the future for others like them. However, we also recognize that at the last survey (2015), less than half of all well-educated expectant and new moms knew all of the signs and symptoms of preeclampsia. Signs and symptoms education remain critical to ensuring women receive a timely diagnosis and management.
But a patient is only half of the patient-provider equation. Research data shows that the best outcomes for mom and baby occur when healthcare providers are well-versed in the best practice guidelines for the diagnosis and treatment of preeclampsia. Data from the California Maternal Quality Care Collaborative (CMQCC) found that over 60% of maternal deaths due to preeclampsia in the state were likely preventable if the patient had been diagnosed in a timely manner and had her blood pressure properly treated.
And finally, at the end of the day, research into better prediction, prevention, diagnosis, and treatment for pregnant women with preeclampsia is the only true way that we are going to move the bar from where it’s been for over 60 years. Telling a woman that she must deliver her baby as early as 20 weeks to save her life simply cannot continue to be an acceptable “treatment” protocol in the 21st century. Finding a cure for preeclampsia goes beyond funding individual research studies: it involves advocating at a systematic level for the prioritization of maternal health as a national (and international) issue that can and should be addressed. Quality improvement research shows that there is room for advancements in all levels of the maternal health experience: education, diagnosis, management, treatment, and prevention. One way that patients and researchers can get involved is through the Preeclampsia Registry: www.preeclampsiaregistry.org